October 19, 2001
Dear Senator/Representative:
Recent years have seen remarkable advances in cancer care, not just in clinical responses to drug therapy but also in pain and symptom management and psycho-social support. These advances should not be placed in jeopardy by sudden and significant changes in the reimbursement system like those apparently under consideration by some in Congress.
Everyone in the cancer community -- patients and physicians alike -- agrees that the current system of Medicare reimbursement for cancer drug therapy is broken. But this is a problem of many years' duration, and Congress has not previously moved to address overpayments for drugs because it has recognized that it cannot do so without correcting the corresponding issue of underpayment for providing chemotherapy to cancer patients.
Now, apparently to achieve savings for other purposes, the matter has been moved to high priority status, even though studies mandated by Congress have not been performed and Congress thus lacks the tools necessary to make an informed decision.
First in 1999 and then again in 2000, Congress gave the General Accounting Office (GAO) the assignment of conducting studies to ascertain the complete costs of providing chemotherapy in the physician office setting, as well as the impact of reimbursement reductions on patient care. Specifically, GAO was instructed to develop, based on its study, recommendations for Medicare payment revision "designed to ensure that medicare beneficiaries continue to have access to health care services under the medicare program." Section 429, Benefits Improvement and Protection Act of 2000.
As reflected in GAO's recent 
  testimony before Congress, the studies apparently have not been carried out 
  as Congress intended, and the answers to these important questions remain unavailable. 
  Most importantly, there is nothing to "ensure that medicare beneficiaries 
  [will] continue to have access to health care services."
  
No knowledgeable observer of cancer care believes that physicians can continue providing the same level of care if reimbursement is substantially reduced. Such reductions could create dislocations that will have an impact beyond physician offices and result in changes in patterns of care that could threaten to overwhelm hospital outpatient departments and exert a serious negative impact on access to quality cancer care.
We understand that there is impatience on the part of some in Congress about this issue and that there are many claims upon any potential savings. It is imperative, however, that savings not be achieved at the expense of patient access and quality cancer care. We therefore urge you, in the strongest possible terms, not to rush to adopt reductions in payment for cancer drugs without corresponding increases in payment for chemotherapy administration to ensure that cancer patients are not deprived of their access to optimal cancer care.
Sincerely,
Cancer Leadership Council
Alliance for Lung Cancer 
  Advocacy Support, and Education
  American Cancer Society
  Cancer Care, Inc.
  The Children's Cause, Inc.
  Coalition of National Cancer Cooperative Groups
  Colorectal Cancer Network
  Cure For Lymphoma Foundation
  The Foundation for the Children's Oncology Group
  International Myeloma Foundation
  Kidney Cancer Association
  The Leukemia & Lymphoma Society
  Multiple Myeloma Research Foundation
  National Alliance of Breast Cancer Organizations
  National Coalition for Cancer Survivorship
  National Patient Advocate Foundation
  National Prostate Cancer Coalition
  North American Brain Tumor Coalition
  Ovarian Cancer National Alliance
  Pancreatic Cancer Action Network
  The Susan G. Komen Breast Cancer Foundation
  The Wellness Community
  US TOO! International, Inc.
  Y-ME National Breast Cancer Organization
cc: 
  Energy & Commerce 
  Committee
  Ways & Means Committee
  Senate Finance Committee
Contact:
Ellen Stovall, Executive 
  Director
  National Coalition for Cancer Survivorship
  1010 Wayne Avenue - 7th Floor
  Silver Spring, Maryland 20910
  Phone: 301/650-9127
  Fax: 301/565-9670